Wednesday, January 23, 2008

A relapse from relapsing?

So after my three day steroid infusion (that really sounds like a drink!) right before Thanksgiving, I swore I would NEVER DO THAT AGAIN! The steroid infusion, not Thanksgiving. I felt so awful, so miserable, so ill, so sick (see where I'm going with this?) that it really didn't seem that it could be worth it. To top it all off, I didn't notice any change in my symptoms. At first.

Veeeerrryyy gradually, in fact so gradually that a moving glacier might have outpaced us, I started noticing some of my symptoms receding. It's now been about two months, the amount of time they did say some people take for the steroid to take effect, and other than the fatigue and the memory stuff, I am doing significantly better. I am no longer limpy and trippy, and I have most of my mornings back. I am able to get a few things done most days, which for me is a huge comfort.

I still feel wiped out most afternoons, and I still take a three or four hour nap almost every day. I still struggle to get anything done in the evenings, but even that doesn't seem as dire as it did before. I also started some other meds and increased dosages on others (actually my doctors did, just to clarify so you don't get the wrong idea...). So now I don't have to race to the bathroom every fifteen minutes and thirty-two seconds. Hurray!

I guess the lesson I've learned here is that like every other time in my life, I am a slow learner. Ha ha ha. No that's not what I learned. Well actually, maybe I did learn that too. No, I think I can say I learned about trust - my doctors DO know what they're talking about when they say try this, it'll probably work, God when he tells me that things will not stay the way they are when times are tough, friends who let me lean on them when I can't take care of myself or my kids or my house, and myself when I need to take time to let myself rest and put everything else to the side for a while. Trust is a hard thing to do, but if a slow learner like me can do it...

1 comment:

  1. So glad to hear of your improvement. Isn't it amazing that doctor's sometimes know what they are doing?

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